nfdi4health
Nationale Forschungsdateninfrastruktur für personenbezogene Gesundheitsdaten
- NFDI
- OpenSource
DataSHIELD
DataSHIELD ecosystem is an infrastructure and series of R packages that enables the remote and non-disclosive analysis of sensitive research data. It has been used with real world and consented research data for over 10 years.
- data privacy
- OpenSource
- R
- R
ARX - Open Source Data Anonymization Software
ARX is an open-source tool for anonymizing sensitive personal data. It offers many privacy/risk models, transformation methods, and utility analyses. Used in research, clinical trials, training, and big-data platforms. Scales to large datasets and includes an intuitive cross-platform GUI.
- anonymization
- de-identification
- privacy
- Java
- HTML
- Shell
dataquieR
dataquieR is an R package designed to conduct automated and standardized data quality assessments. It can be applied to all sorts of tabular data. Spreadsheet-type metadata can be used to specify descriptions, expectations, and requirements about the data.
- Cohort studies
- data quality
- data quality assessment
- + 11
- R
- JavaScript
- HTML
- + 1
VAMBN
Variational Autoencoders Modular Bayesian Networks (VAMBN) is a modelling approach to generate high quality, longitudinal & heterogeneous synthetic patient level data.
- synthetic data
- Python
- R
syndat
Syndat is a python package for evaluation and visualization of synthetic data.
- clinical data
- data privacy
- data quality
- + 3
- Python
Syndat Dashboard
A Dashboard for evaluation & visualization of synthetic patient level data.
- clinical data
- data privacy
- data quality
- + 2
- TypeScript
- Python
- CSS
- + 3
Health Study Hub
The Health Study Hub is an inventory of German studies in the field of clinical, public health and epidemiological health research. Its aim is to enable and foster the implementation of the FAIR principles (Findability, Accessibility, Interoperability and Reusability) in the health domain.
- clinical studies
- epidemiological studies
- FAIRness
- + 3
German Portal for Medical Research Data (FDPG)
The German Portal for Medical Research Data (FDPG) is a central platform enabling researchers to access routine clinical data and biosamples from German university hospitals, supporting secure, standardized, and transparent cross-centre medical research.
- TypeScript
- JavaScript
- Shell
- + 4